Comments for Family Natters http://familynatters.com Just another WordPress weblog Tue, 7 Oct 2008 08:23:47 +0000 http://wordpress.org/?v=2.2.3 Comment on Review: Total Fitness Hull by Total Fitness Results. | 7Wins.eu http://familynatters.com/2007/09/30/review-total-fitness-hull/#comment-633 Total Fitness Results. | 7Wins.eu Wed, 03 Sep 2008 13:11:12 +0000 http://familynatters.com/2007/09/30/review-total-fitness-hull/#comment-633 [...] [25] Sites you may be interested in Britney Spears: spokesperson for Bally Total Fitness? Family Natters […] [25] Sites you may be interested in Britney Spears: spokesperson for Bally Total Fitness? Family Natters

]]> Comment on Cerebral haemorrhage due to rupture of cavernous hemangioma - early days by Cerebral Palsy Children Complaints http://familynatters.com/2008/03/03/cerebral-haemorhage-due-to-rupture-of-cavernous-haemogina-early-days/#comment-523 Cerebral Palsy Children Complaints Fri, 08 Aug 2008 16:37:54 +0000 http://familynatters.com/2008/03/03/cerebral-haemorhage-due-to-rupture-of-cavernous-haemogina-early-days/#comment-523 <strong>Cerebral Palsy Children Complaints...</strong> I actually felt like it was a bit anticlimactic and I really wanted was to know how the stroke technically happened and how she recovered and came back. I wanted to know what we could learn in practical knowledge about preventing and recovering from br... Cerebral Palsy Children Complaints…

I actually felt like it was a bit anticlimactic and I really wanted was to know how the stroke technically happened and how she recovered and came back. I wanted to know what we could learn in practical knowledge about preventing and recovering from br…

]]> Comment on Cerebral haemorrhage due to rupture of cavernous hemangioma - part 2 by brain aneurysm http://familynatters.com/2008/03/04/cerebral-haemorhage-due-to-rupture-of-cavernous-haemogina-part-2/#comment-151 brain aneurysm Thu, 13 Mar 2008 00:44:57 +0000 http://familynatters.com/2008/03/04/cerebral-haemorhage-due-to-rupture-of-cavernous-haemogina-part-2/#comment-151 [...] flew to?Seattle to be?with Allyson.? Allyson never regained conconcordbaptist.wordpress.comCerebral haemorrhage due to rupture of cavernous hemangioma - part 2 continued from Cerebral haemorhage due to rupture of cavernous haemogina - early days The next day [...] […] flew to?Seattle to be?with Allyson.? Allyson never regained conconcordbaptist.wordpress.comCerebral haemorrhage due to rupture of cavernous hemangioma - part 2 continued from Cerebral haemorhage due to rupture of cavernous haemogina - early days The next day […]

]]> Comment on Support and Information for Cavernoma Sufferers by Ian Stuart Ph.D. http://familynatters.com/2008/03/07/support-and-information-for-cavernoma-sufferers/#comment-147 Ian Stuart Ph.D. Sat, 08 Mar 2008 07:37:45 +0000 http://familynatters.com/2008/03/07/support-and-information-for-cavernoma-sufferers/#comment-147 Dear Family Natters, Many, many thanks "family natters." If it's okay, I will send you further information today by snail. I am so glad about the conference receiving publicity. As well as speeches by neurosurgeons in the morning, we have Connie Lee, President, coming over to the UK. Angioma Alliance was founded in 2002 by Connie Lee, a clinical psychologist and the mother of a daughter with multiple cavernous angiomas. Connie’s personal story with cavernous angioma began in January, 2000. At that time, Connie’s 4-month-old daughter Julia received brain surgery for a major hemorrhage and hydrocephalus caused by a cavernous angioma. It was not known that she had the condition, and by the time Julia was taken to the operating room she was near death. Her neurosurgeon performed a craniectomy, stopped the bleeding and removed the angioma. Since then, Julia has had more cavernous angioma hemorrhages, three of which required surgery. Today, Julia is a bright, outgoing, active six-year-old who loves to swim and ride horses. Although she had the hereditary form, Julia is the first in her family to have the illness. Of those with cavernous angioma, 25% are diagnosed as children. Best, Ian. Dear Family Natters,

Many, many thanks “family natters.” If it’s okay, I will send you further information today by snail. I am so glad about the conference receiving publicity. As well as speeches by neurosurgeons in the morning, we have Connie Lee, President, coming over to the UK.

Angioma Alliance was founded in 2002 by Connie Lee, a clinical psychologist and the mother of a daughter with multiple cavernous angiomas. Connie’s personal story with cavernous angioma began in January, 2000. At that time, Connie’s 4-month-old daughter Julia received brain surgery for a major hemorrhage and hydrocephalus caused by a cavernous angioma. It was not known that she had the condition, and by the time Julia was taken to the operating room she was near death. Her neurosurgeon performed a craniectomy, stopped the bleeding and removed the angioma. Since then, Julia has had more cavernous angioma hemorrhages, three of which required surgery. Today, Julia is a bright, outgoing, active six-year-old who loves to swim and ride horses. Although she had the hereditary form, Julia is the first in her family to have the illness. Of those with cavernous angioma, 25% are diagnosed as children.

Best, Ian.

]]> Comment on Cerebral haemorrhage due to rupture of cavernous hemangioma - part 2 by Ian Stuart Ph.D. http://familynatters.com/2008/03/04/cerebral-haemorhage-due-to-rupture-of-cavernous-haemogina-part-2/#comment-146 Ian Stuart Ph.D. Fri, 07 Mar 2008 08:02:02 +0000 http://familynatters.com/2008/03/04/cerebral-haemorhage-due-to-rupture-of-cavernous-haemogina-part-2/#comment-146 Hi, If there is anyway that you can contact others' through your site and tell them about Angioma Alliance (UK) - info@angiomaalliance.org.uk ; the work we do etc. that would be tremendous. Ian Stuart. Hi,

If there is anyway that you can contact others’ through your site and tell them about Angioma Alliance (UK) - info@angiomaalliance.org.uk ; the work we do etc. that would be tremendous.

Ian Stuart.

]]> Comment on Strawberry birthmarks - (hemangioma) by Ian Stuart Ph.D. http://familynatters.com/2008/02/06/strawberry-birthmarks-hemangioma/#comment-143 Ian Stuart Ph.D. Tue, 04 Mar 2008 19:49:02 +0000 http://familynatters.com/2008/02/06/strawberry-birthmarks-hemangioma/#comment-143 Look at Contact a Family Website: www.cafamily.org.uk Best, Ian. Look at Contact a Family Website: www.cafamily.org.uk

Best,

Ian.

]]> Comment on Cerebral haemorrhage due to rupture of cavernous hemangioma - early days by Ian Stuart Ph.D. http://familynatters.com/2008/03/03/cerebral-haemorhage-due-to-rupture-of-cavernous-haemogina-early-days/#comment-142 Ian Stuart Ph.D. Tue, 04 Mar 2008 14:35:34 +0000 http://familynatters.com/2008/03/03/cerebral-haemorhage-due-to-rupture-of-cavernous-haemogina-early-days/#comment-142 I am very sorry. Please contact me as soon as you can and read the website. Many thanks. Ian. I am very sorry. Please contact me as soon as you can and read the website.

Many thanks.

Ian.

]]> Comment on Strawberry birthmarks - (hemangioma) by admin http://familynatters.com/2008/02/06/strawberry-birthmarks-hemangioma/#comment-138 admin Thu, 28 Feb 2008 21:30:39 +0000 http://familynatters.com/2008/02/06/strawberry-birthmarks-hemangioma/#comment-138 Hi Courtney and Rima. Thanks for getting in touch, and sorry for not responding earlier. I wanted to put something together about another hemangioma Annie has in her brain that did bleed when she was 5 weeks old, and I have now although I can't et this comment to hyperlink. My gp said he had seen research that said children with brain hemangiomas often did have facial ones. But this is very, very rare indeed and so do not think that you should be worried!! Hi Courtney and Rima.
Thanks for getting in touch, and sorry for not responding earlier. I wanted to put something together about another hemangioma Annie has in her brain that did bleed when she was 5 weeks old, and I have now although I can’t et this comment to hyperlink. My gp said he had seen research that said children with brain hemangiomas often did have facial ones. But this is very, very rare indeed and so do not think that you should be worried!!

]]> Comment on Strawberry birthmarks - (hemangioma) by rima http://familynatters.com/2008/02/06/strawberry-birthmarks-hemangioma/#comment-130 rima Wed, 20 Feb 2008 00:09:24 +0000 http://familynatters.com/2008/02/06/strawberry-birthmarks-hemangioma/#comment-130 My son's appeared a week or two after he was born. It was towards the top of his head and started out very small, but kept growing to about a centimeter in diameter and then plateaued when he was about one. Our Ped said it should go away entirely by the time he's six. It hasn't been a problem and is pretty well hidden by a good mop of hair, but I always worry that he'll hit his head and it will bleed. We have an acquaintance whose daughter had a large one on her earlobe and had it surgically removed. She was on an extreme surgeries episode on the Discovery Channell! My son’s appeared a week or two after he was born. It was towards the top of his head and started out very small, but kept growing to about a centimeter in diameter and then plateaued when he was about one. Our Ped said it should go away entirely by the time he’s six.

It hasn’t been a problem and is pretty well hidden by a good mop of hair, but I always worry that he’ll hit his head and it will bleed. We have an acquaintance whose daughter had a large one on her earlobe and had it surgically removed. She was on an extreme surgeries episode on the Discovery Channell!

]]> Comment on Strawberry birthmarks - (hemangioma) by Courtney http://familynatters.com/2008/02/06/strawberry-birthmarks-hemangioma/#comment-123 Courtney Fri, 08 Feb 2008 19:00:02 +0000 http://familynatters.com/2008/02/06/strawberry-birthmarks-hemangioma/#comment-123 My preemie had/has one. It is getting less and less and we were told the same thing that it would be gone by about 1 and she'll be 2 in July. If it's fading, don't worry it'll go soon enough. Good luck though. My preemie had/has one. It is getting less and less and we were told the same thing that it would be gone by about 1 and she’ll be 2 in July. If it’s fading, don’t worry it’ll go soon enough. Good luck though.

]]>